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Home » What's New » Sjogren’s Awareness – Understanding The Invisible Disease 

Sjogren’s Awareness – Understanding The Invisible Disease 

In an effort to spread the word to increase awareness about Sjogren’s Disease, eye care providers are speaking out about this hard-to-diagnose condition.

Sjogren’s is a systemic autoimmune disorder that can affect the whole body. One of the primary symptoms is excessive dryness particularly in the eyes and mouth. Other serious symptoms include chronic fatigue and pain, specifically in the joints, as well as major organ dysfunction. The syndrome also increases chances of neuropathies and lymphomas. 

The severity of the disease varies greatly, ranging from mild discomfort to debilitating symptoms that can seriously impair normal functioning in everyday life. Early diagnosis and treatment can prevent serious complications and improve quality of life. There is currently no cure for Sjogren’s, yet there are treatments for many of the individual symptoms. On average patients are prescribed upwards of 8 medications to treat the wide range of symptoms. 

Women are nine times more likely to develop Sjogren’s than men and diagnosis usually occurs around the age of 40. Unfortunately, because the symptoms vary from person to person, and the disease often occurs in the presence of or mimics other diseases (such as lupus, rheumatoid arthritis, menopause, allergies or multiple sclerosis) the disease is often misdiagnosed or overlooked. Further, because the symptoms can affect different parts of the body system such as the teeth, eyes or musculoskeletal system, various health professionals are sought to diagnose or treat specific symptoms (such as rheumatologists, dentists or eye doctors) while the big picture is often missed. On average it takes almost three years to obtain a Sjogren’s diagnosis once symptoms are noticed.  

Since dry eye is one of the most common early symptoms of the disease, there has been an effort to educate eye care providers to recognize and to be aware to look for symptoms of the disease. Patients also need to be aware and proactive about speaking to their health care providers about potential diagnosis and treatment. Knowing the risk factors and symptoms can be imperative to a faster diagnosis. 

Your eye doctor may be able to detect and diagnose Sjogren's syndrome from dry eye symptoms as well as other diagnostic tests and review of symptoms. With this diagnosis the treatment will be different from typical dry eye disease. Since it is an autoimmune disease, lubricating eye drops may provide temporary relief but will not address the source of the problem. Your doctor may prescribe newer cyclosporine drops as well to treat the inflammatory response. If you have dry eyes and typical treatments aren’t working, it may be worthwhile to ask about Sjogren’s. 

Sjogren’s patients often feel misunderstood because most of the debilitating symptoms are not visible to others and the disease is often not recognized largely due to a lack of awareness. By increasing both public and professional awareness, the goal is to reduce diagnosis time and to advance research on the cure for this disorder.

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Valued Patients,

Here at Brooks Eye Center, our patients’ and staff’s health and safety is our utmost priority. Given the recent outbreak of COVID-19, we are closely monitoring the situation as it applies to our patients and staff and adjusting procedures accordingly. We want our patients to know that we will do everything within our scope to keep providing quality eyecare while being diligent about infection control and prevention.

Our exam areas are being cleaned and disinfected after each patient is treated and all our staff are following strict hand-washing and sanitizing regimens. We have also implemented a pre-screening process and are taking measures to minimize waiting in common areas.

In addition to our in-office efforts, please consider the following preventative measures: if you have traveled internationally, been on a cruise, or traveled to a high-risk area, please call our office before coming in. Also, if you have a compromised immune system, have experienced any respiratory symptoms (cough, shortness, or fever), please reschedule to been seen at a later date.

These procedures are an effort to minimize any unnecessary exposure to possible viruses and infections to our staff and patients, as well as to prevent the spread of this virus as much as you can. Your patience and understanding during this time is greatly appreciated. Please don’t hesitate to call our office with any questions or concerns.

Thank you!